Gathering views from people living with myalgic encephalomyelitis (ME)
The Scottish Government has asked us to find out how people living with myalgic encephalomyelitis (ME) experience health and social care, and what support they would like to see in place.
This will help the Scottish Government to address particular gaps in knowledge and understanding about the care and support needs of those who are affected by ME.
During February and March 2020 we worked with individuals, carers and family members, and support organisations to gather as much information as possible. We had over 500 responses to our online survey and spoke to a large number of people face-to-face, over the phone and in groups.
Thank you to everyone who took part.
The information gathering phase has now finished and we are collating and analysing the feedback and comments we received.
The final report will be shared with Scottish Government, and on this page, in due course.